When Your Child Is Diagnosed with DIABETES: PARENTS’ QUESTIONS for the Health Care Team
Parents of children with diabetes often have concerns about the disease, its impact on their family, and how to keep their children safe and healthy. Use these questions to talk with your child’s health care team and learn about your child’s diabetes care needs… at diagnosis and later on as well. The links provided below each question have background information about the topic in question to help you prepare for your child’s health care team visit.
What are the different types of diabetes?
- Which type of diabetes does our child have?
- Will it ever go away?
- Will my child with type 1 diabetes always have to take insulin?
What are my child’s treatment goals?
- How can we help our child meet these goals?
- How often will our child need to visit you each year?
Diabetes in Teens (See the tip sheets in English and Spanish about being active, staying at a healthy weight, making healthy food choices, and dealing with the ups and downs of diabetes.)
Who should be part of my child’s health care team and what role does each team member play in the care of my child?
- How do we contact them?
- What are their hours?
Overview of Diabetes in Children and Adolescents (See Visiting the Health Care Team)
How can we work together as a family to help our child?
- How can we help our child check blood glucose, take insulin or other medication, eat healthy foods, be more active, and learn about diabetes?
- Who can help us work together as a family?
Overview of Diabetes in Children and Adolescents (See Helping Children and Adolescents Manage Diabetes)
Diabetes HealthSense (Select ‘Child’ or ‘Teen and young adult’ from the ‘Age’ drop-down menu)
What emotional issues might our child and family face?
- Will diabetes affect the way our child behaves?
- When do we start letting our child manage his/her own diabetes care?
- Who can help us cope with these issues?
Should we tell friends and family about our child’s diabetes?
Who can help us if we don’t have medical insurance?
What resources are there to help our child in school?
What does this mean for other members of our family?
- Does it mean our other children will get diabetes too?
- What about other family members?
What is Diabetes? (See What Treatments Exist for Type 1 Diabetes?)
Overview of Diabetes in Children and Adolescents (See Predicting Type 1 Diabetes)
What research is going on?
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) conducts and supports a wide range of research aimed at finding ways to prevent and treat diabetes and its health complications. Several large national and international studies are under way through NIDDK and other groups.
DirecNet —The Diabetes Research in Children Network—involves a number of clinical centers working to determine the potential use of glucose monitoring technology and its impact on the management of type 1 diabetes in children.
The National Collaborative on Childhood Obesity Research (NCCOR) is promoting research to help reverse the childhood obesity epidemic.
The SEARCH for Diabetes in Youth study will help us learn how many youth have type 1 and type 2 diabetes, identify the medical problems that arise in children with diabetes, improve the health care children receive, and understand how diabetes shapes their daily lives. www.searchfordiabetes.org/
TEDDY: Consortiums to identify The Environmental Determinants of Diabetes in the Young is an international effort to identify infectious agents, dietary factors, or other environmental factors that trigger type 1 diabetes in genetically susceptible individuals.
The TODAY study is following a large group of children with type 2 diabetes to find the best ways to care for type 2 diabetes in children and teens.
Type 1 Diabetes TrialNet is a group of studies looking at ways to prevent type 1 diabetes or to maintain the “honeymoon phase” by treating type 1 diabetes early. To find out if you can join, visit the TrialNet website or call 1-800-HALT-DM1 (1-800-425-8361).
A lot of other research is going on. To find studies in your area, talk to your health care team, visit NIDDK’s Clinical Trials, Guidelines, and Research Reports webpage, and check the resources listed below.
- Honeymoon phase
- Honeymoon phase: temporary remission of hyperglycemia that occurs in some people newly diagnosed with type 1 diabetes, when some insulin secretion resumes for a short time-for example, a few months-before stopping again.
Additional Resources for Parents and Children
National Diabetes Education Program
www.YourDiabetesInfo.org or call 1-888-693-NDEP (1-888-693-6337)
Juvenile Diabetes Research Foundation International (JDRF)
www.jdrf.org or call 1-800-223-1138
American Diabetes Association (ADA)
www.diabetes.org or call 1-800-DIABETES (1-800-342-2383)
Children with Diabetes
Joslin Diabetes Center (JDC)
www.joslin.org or call 1-800-JOSLIN (1-800-567-5461)
Weight Control Information Network (WIN)
www.win.niddk.nih.gov or call 1-877-946-4627
A program to provide up-to-date, science-based information on weight control, obesity, physical activity, and related nutritional issues.
We Can! (Ways to Enhance Children's Activity & Nutrition)
wecan.nhlbi.nih.gov or call 1-866-35-WECAN (1-866-359-3226)
A national movement designed to give parents, caregivers, and communities a way to help children stay at a healthy weight.